Research Papers and Studies
courtesy of Bill Biermann
This page contains some of the most recent research and
Powerpoint presentations. (Our Foundation has provided financial
support for some of the projects on this page). We are thankful for
the dedication shown by the researchers and medical professionals
who have contributed. Their work is definitely a vocation!!
2009 Dr. Saland Presentation Powerpoint
Outcome of Renal Transplantation. by Davin
Davin Article
Complement Factor H in Twins by Fremeaux-Bacchi
Fremeaux-Bacchi Study
MCP and Factor H studies by Heinen
Heinen study
Factor H Article by Kavanagh
Saunders Article
General Article - Complement and Atypical HUS
Complement and Atypical HUS
Kemp Research Article
Overall Article
Renal Transplantaton (June 08)
Factor H Detailed study in Spain 2008
FOR MORE INFORMATION, PLEASE VISIT BILL BIERMANN'S WEBSITE at
www.atypicalhus.50megs.com
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2010 genetic testing and treatment.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
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Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
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