September 25, 2010 from 9am to 6pm – Barker Brook Golf Course
Tonight is the eve of Ryan's 11th birthday. I go in his room as I do every night to tuck him in and I say "You know, it was about this time of night that you told me you were ready to come out of my belly and into the world." He hides his head and says "Yeah, that was before all of this." I asked him what he meant. He said "Before all of this." and pointed to all the scars on his chest and belly from catheters and g-tubes. Of course the tears were welling in my eyes already. So I explained th
… ContinuePosted on April 21, 2010 at 10:30pm — 5 Comments
Posted on March 23, 2010 at 10:04pm — 11 Comments
It's been a year now since we've had a inpatient stay with Ryan. I try not to say that out loud because I think it's bad luck, but I guess typing is really not out loud. For the past few weeks I have been following what I believe is the first patient since Ryan at our Children's Hospital with an Atypical HUS diagnosis. While reading updates on this little beauty's status I am quickly reminded of all the horrors that accompany the initial diagnosis. Not only the questions about the illness, bu
… ContinuePosted on February 18, 2010 at 9:17am — 5 Comments
Posted on August 26, 2009 at 8:07am — 30 Comments
Posted on June 8, 2009 at 10:23am — 2 Comments
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

© 2010 Created by Christy White.
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