Posted on September 2, 2010 at 10:18pm — 1 Comment
I was wondering if anyone of you have used any other treatment other than dialysis to treat high potassium levels as a long term treatment???
Ash has been constantly having high potassium levels and his docs have been using resonium to bring his levels down and that is effective however the docs say this is not a good long term option. I asked Ash's doc if there is anything to treat it with long term other than dialysis and he didnt really give me a straight answer which makes
… ContinuePosted on August 7, 2010 at 7:22am — 10 Comments
Hi all,
My little man turned 2 today. It funny how his birthday takes on such a huge meaning for me. I think this is because we were not sure if he would make it to his 1st bday let alone 2nd. I find myself feeling so protective of this day and dont want to share it with anyone else - to me this day is all about Ash. These feelings have come up because my sister in law is due to have her baby and i have been petrified that she would have her baby on the same day as Ash's bday. I know i
… ContinuePosted on June 10, 2010 at 7:43am — 6 Comments
Hi all,
I know this is a little off the aHUS track but PNH is one of the things Ashley was tested for in the beginning. I was reading our local newspaper this morning and there is a local lady that has PNH and over here in Australia Solaris is approved for use with PNH patients but as yet is not funded by the phamaceutical benefits scheme. PNH sufferers are trying to push that it be put on the pharmaceutical benefits scheme as without the use of this drug they dont have much chance of
… ContinuePosted on May 28, 2010 at 1:49am — 4 Comments
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