Started this discussion. Last reply by Linda Burke Aug 8.
Hi there everyone - I'm late updating from this last clinic honestly because we are in a bit of a funk. A little bit stalled on the medical stuff - so I'll run through that and then get to the fun stuff ;-).
For the #'s folks - things are rocking along, Potassium of 4.3, phos of 8.5 (this is back up this month so they may change around some meds), BUN 44, creatinine 10.5, Platelets 215 and HGB and HCT down a little to 9.1 and 26.2. We are increasing his Aranesp from every 2 wee
… ContinuePosted on August 27, 2010 at 11:16am — 2 Comments
Hi there - here's the post to our carepage - once we start moving forward on this - my carepage updates are probably a little less technical than what makes sense on this page - so I may start just putting the nitty gritty more detailed stuff here - but if I don't - feel free to ask me anything - we are happy to share in the hopes that the info or issues that come up with us on this journe
… ContinuePosted on July 13, 2010 at 8:37pm — 2 Comments
Hi there everyone! Sorry for the extra update this month but a couple of things we wanted to tell you all about and realized that there's something for everyone - all my GA folks are going to be lost on the first paragraph and all you Northern cousins and friends will be lost on the second! Check out the new pics we posted to help explain!
… ContinuePosted on July 5, 2010 at 1:51pm — 8 Comments
Hey there everyone - just got back from a LONG clinic today. For the #'s folks here we go - BUN is down to 52, creatinine is down to 9.5, Potassium is down to 4.3, Calcium is steady at 9.8, HCT and HGB are still low at 9.3 and 26, and platlets are steady at 225. The big #'s news is his phosphorus - which had been giving us fits for awhile (last month is was 11.6 and this needs they lik
Posted on June 14, 2010 at 2:51pm — 7 Comments
Well, we are getting back to normal after all the excitement from the hike and had clinic this morning. Things went pretty well and Hyde was SO brave for having his port accessed (this had been getting more and more tramatic for the both of us the last few months) that Ms. Ginger (our child life specialist) got Hyde a super special toy. Have I mentioned lately how lucky we are to have Egleston/CHOA practically in our bac
… ContinuePosted on May 17, 2010 at 9:30pm — 9 Comments
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