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lisa ann peterson's Discussions
ssi
6 Replies
Started this discussion. Last reply by KaTrina Slaughter Sep. 17, 2009.
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Comment Wall (24 comments)
- At 1:27pm on February 15, 2010,
Jodi Kayler said…
- What day is Chloe's appointment this week? Coen will be there Wed.
- At 11:34pm on February 14, 2010,
Linda Burke said…
- Hey you! Hope you had a fabulous turnout at Chloe's blood drive on Saturday - thanks for your role in supporting Omak's folks with donating blood, offering the gift of life to others.
When you're not too busy with spinning class, give us an update please on both Chloe's blood drive and on your fitness challenge!
- At 7:52am on February 10, 2010,
Heather Still said…
- Hey there....just looking for a Chloe update. I know she was going to the doc and was puffy/congested. Hoping all is okay :)
- At 8:27am on February 6, 2010,
Heather Still said…
- Glad she's feeling better....what a relief for you :)
- At 8:05am on February 5, 2010,
Heather Still said…
- Hope Chloe is doing okay. I fear the worst everytime Ryan gets a stomach bug. Hope that's all that's going on with her. Thinking of you :)
- At 9:44am on January 18, 2010,
Jodi Kayler said…
- Whoohoo!
- At 1:32pm on December 18, 2009,
KaTrina Slaughter said… - Hi,
Love the pics and music!! How did you do that?? I'll have to steal that. :)
Anyway, they are wanting us to go to Washington University Hospital, in St. Louis. They are suppose to be a teaching hospital, with a huge Children's Hospital attached. :) I think Cheryl thought it was in Washington because of the name. :) I love your little girl, so precious. I'll have to read her story. Did you not love the Make a Wish trip to Disney?? When did you go? We took Syd last March when she turned 3. :)
- At 7:06am on November 20, 2009,
Jill Ziegler said… - Its been a looonnnnnggggg year. It all began in January. I was sick all thru Dec 08. But I work with children and thought I was just catching every bug that goes around. I ended up in our local hospital ER in early Jan 09. I had a blood clot, covered in bruises, dangerously low platelets, vomiting and BP so extrememly high. They couldnt figure anything out. All they knew was my kidneys were shutting down. After 4 days I was transferred to Barnes Jewish in STL, MO. Saved my life!!!! They did plasmapheresis treatments (which I didnt respond to, made me sicker). Through labs determined I had aHUS. So I began dialysis. Spent most of Jan in that hospital. They sent my blood work to Iowa where it was determined I had the H factor gene. We are still learning alot. You can ask me anything you want to know. I may not have the answer, but I can get it. Such a scary disease. I am only here by the grace of God. He got me to Barnes and they saved my life. They have actually saved it twice this year. I hope I can help you in anyway I can. How is yor daughter now and what happened to her?
- At 1:18am on November 20, 2009,
Jerry Pickle said… - Lisa, Happy to be a part of this community.
- At 11:06pm on November 2, 2009,
Linda Burke said…
- Adorable photos!
Profile Information
- Birthday
- October 8
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or a researcher with an interest in aHUS issues?
- No
- My child ( or myself as a patient) is best described as:
- Factor H (CFH) /Protein (Gene)
Lisa ann peterson's Blog
lil miss chloe
good afternoon all...
first i will start with the blood drive what a huge sucess it was.. thank you omak because of you 240 lives were saved. 94 people registered and 80 units of blood were collected.. how neat is that. yesterday chloe had her doctors apt. she had an echo that looked good and an ultrasound and he said that was good as well he said her kidney is s
Posted on February 16, 2010 at 6:11pm — 4 Comments
blood drive and then some
well the blood drive was a huge sucess.. we had 94 people register and 80 units of blood were collected.. omak saved 240 lives.. my challenge has been a little rocky i feel like stress is playing a big role in that.. i have body analysis on wed so i will update about that then.. also my princess and i head to spokane in a few and iam incrediably nervous about all of these tests. i keep telling myself that this ahus is a dream and iam going to wake up soon and my princes
… ContinuePosted on February 15, 2010 at 12:59am — 4 Comments
AHUS huh who knew........
Posted on January 29, 2010 at 12:54pm — 5 Comments
lil miss sunshine....
Posted on January 21, 2010 at 11:13am — 6 Comments
About
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
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It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
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