A month ago I had an individaul come to me offering to donate a kidney transplant. Last night at the time of 8:38pm, I get a phone call with a laughing tone on the other end, telling me that he is going back to his ex to get married and that I am not to receive his kidney. This brought my hope level up and now I'm hurt, and have dealt with disappointment long enough. I'm ready to find a donor, or just accept a deceased kidney at this point, to be honest. It seems like as my hope goes up, my c
… ContinueAdded by Jessica Olivia Frysz on March 9, 2010 at 12:54pm — 3 Comments
Added by sally rakes on March 8, 2010 at 5:53pm — 5 Comments
Added by Phyllis Ann Talbot on March 5, 2010 at 2:48pm — 6 Comments
Added by Svetlana Finley on March 5, 2010 at 9:46am — 5 Comments
Hey everybody,
Been awhile since I've updated on my Brody man so I thought I would just leave a short note and a hello. Sorry Phyllis to break your blog run:)
We saw Brody's nephrologist today, things are looking good for Brody's kidneys. Dr. thinks they have recovered 100% from his occurance almost a year ago (March 6). Brody has been sick with colds or viruses on and off for the last couple of months thanks to his big sissy who started preschool this year. He seems to be holdi
… ContinueAdded by Amy Swarbrick on March 5, 2010 at 1:48am — 6 Comments
Yippee!!! We got home a few minutes ago and Hyde's sleeping on the sofa! Sorry i didn't update earlier but we had kind of a rough evening/night/morning with blood pressure, itching, and pain for Hyde - so didn't want to jinx anything until we were on the way home. Hyde didn't get too much sleep last night - think the rash and the surgery finally caught up with him and he was fussing pretty much every 5 min or so but seems better today -
Added by Phyllis Ann Talbot on March 4, 2010 at 4:09pm — 4 Comments
Oh well - guess we got a little overexcited - we really had thought Hyde might be going home today - but no
Added by Phyllis Ann Talbot on March 3, 2010 at 12:12pm — 3 Comments
Hey everyone - just to let you know - Hyde's still doing really well - he stayed with Bill last night and did well - only my tough little kid would rather deal with the pain of having two organs taken out than to take any medicine he's not used to :-(. He did take some of the 'good' tylenol yesterday midday - and took a long nap and then was able to get up and move around a little
Added by Phyllis Ann Talbot on March 3, 2010 at 9:23am — No Comments
Hey there everyone - just in case you haven't been able to get on the carepage - Heather mentioned she was having some problems - I'm actually breathing a little easier - see latest update below - but basically so far so good! ;-)
Our night and PD!!
Hey there everybody - I'm sure you are all SICK of hearing from us by
Added by Phyllis Ann Talbot on March 2, 2010 at 9:24am — 4 Comments
Added by Zofia on February 28, 2010 at 1:30pm — 4 Comments
Hey there everyone - just a quick update to let you know that it looks like we are all set for Hyde's surgery on March 1st. The plan is for us to be admitted on Sunday, Feb. 28th and we don't have a set time yet but the scheduler said 'noonish' so it definitely won't be first thing in the morning :-(. Hyde's going to be THRILLED to not be able to eat and drink until then - oh well.
If you know anybody that's going to want to be updated on how everything
Added by Phyllis Ann Talbot on February 23, 2010 at 8:45pm — 7 Comments
Added by Kerri Grey on February 22, 2010 at 6:08pm — 7 Comments
Since I first posted about Christopher's first relapse, his numbers have continued to improve, his spirits have been tremendous and finally an appetite! We were moved out of the ICU this afternoon onto the medical floor and are keeping our fingers crossed that all goes as planned. Chris will be an "add-on" for surgery on Monday to have his PD catheter removed and hopefully will be sent home a few days after that. He came in determined to celebrate his birthday with his favorite nurses and it
… ContinueAdded by Crystal Ferreira on February 20, 2010 at 1:30am — 5 Comments
Added by Kerri Grey on February 18, 2010 at 4:00pm — 11 Comments
It's been a year now since we've had a inpatient stay with Ryan. I try not to say that out loud because I think it's bad luck, but I guess typing is really not out loud. For the past few weeks I have been following what I believe is the first patient since Ryan at our Children's Hospital with an Atypical HUS diagnosis. While reading updates on this little beauty's status I am quickly reminded of all the horrors that accompany the initial diagnosis. Not only the questions about the illness, bu
… ContinueAdded by Heather Still on February 18, 2010 at 9:17am — 5 Comments
good afternoon all...
first i will start with the blood drive what a huge sucess it was.. thank you omak because of you 240 lives were saved. 94 people registered and 80 units of blood were collected.. how neat is that. yesterday chloe had her doctors apt. she had an echo that looked good and an ultrasound and he said that was good as well he said her kidney is s
Added by lisa ann peterson on February 16, 2010 at 6:11pm — 4 Comments
Added by Martha L. Rusche on February 15, 2010 at 12:02pm — 10 Comments
well the blood drive was a huge sucess.. we had 94 people register and 80 units of blood were collected.. omak saved 240 lives.. my challenge has been a little rocky i feel like stress is playing a big role in that.. i have body analysis on wed so i will update about that then.. also my princess and i head to spokane in a few and iam incrediably nervous about all of these tests. i keep telling myself that this ahus is a dream and iam going to wake up soon and my princes
… ContinueAdded by lisa ann peterson on February 15, 2010 at 12:59am — 4 Comments
Well, I received an email from my potential kidney donor. He received news that he has been approved to get tested to become my donor officially. I am approaching my 22nd birthday on the 23rd of this month, and I am becoming more and more hopeful for my kidney transplant, that I will be able to have a normal life soon enough. I am not trying to rush things by all means, this could be my one and only shot of becoming a successful transplant recipient. As my former nephrologist told me "you are
… ContinueAdded by Jessica Olivia Frysz on February 14, 2010 at 11:13pm — 12 Comments
Well its been awhile and I feel bad everytime I write on here its always something bad or with questions I have. I wanted to start off by saying Matt will be 6 months on the 27th of this month. He is growing taller and getting chunck rolls on his arms and legs. Though I believe this is more to holding fluids than baby fat. He is talking and making laughing noises and rolls all over the place. He is always smiling and never (except when he doesnt feel good) fussy. Such a good sleeper thru out
… ContinueAdded by Kristina on February 13, 2010 at 3:53pm — 4 Comments
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

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