Sharing the Expertise-
our 'Doc to Doc Registry'

Physicians wishing to connect with other doctors experienced with the complexities of aHUS' multiple issues and presentations may contact:


Patrick Brophy, MD
University of Iowa
Pediatric Nephrology, Dialysis & Transplantation
Office: (319) 384-3090
Fax: (319) 384-3050
Iowa City, Iowa
aHUS interests: diagnosis and ongoing care of multiple patients, dialysis issues, and transplantation

Stuart Goldstein, MD
Pediatric Nephrology
Texas Children's Hospital: Attending Physician, Renal Service:
Medical Director, Renal Dialysis Unit
Houston, Texas
Ph: (832) 824-3363
Fax: (832) 825-3889
renalcenter@ texaschildrenshospital.org
aHUS interests: long-term (10yrs+)PD dialysis, hemodialysis, growth issues/growth hormone

Matt Hand, DO
Carrie Gordon, MD
Maine Medical Partners Pediatric Specialty Care (Nephrology)
Office: (207) 662-5522
Fax: (207) 662-5526
Portland, Maine
The Barbara Bush Children's Hospital at Maine Medical Center
aHUS interests: multiple aHUS patients, Soliris, dual organ transplant, TRALI incidence with plasmapheresis

Joel Hernandez, MD
Pediatric Nephrology
Sacred Heart Children's Hospital
Spokane, Washington
Office: (509) 474-5445
aHUS interests: multiple aHUS patients, Soliris

Christoph Licht, MD, FASN
Asst. Professor of Paediatrics
Division of Nephrology
The Hospital for Sick Children
Toronto, Canada
Tel: +1 416 813 7654 x 2058
Fax: +1 416 813 6271
email: christoph.licht@sickkids.ca
aHUS interest: research focused on complement-based renal diseases

Julius Sherwinter, MD
Dunwoody Pediatrics (Nephrology) and the Children's Kidney Center
Office: (770) 394-3458
Atlanta, Georgia
Chief Pediatric Nephrology
Associate Clinical Professor
Children's Healthcare of Atlanta
aHUS interests: infants and Soliris


We deeply appreciate the generosity of the physicians above, who have graciously volunteered to share their aHUS expertise and experiences. We extend a warm welcome to all physicians or researchers with aHUS case experiences; doctors wishing to add their contact information to this 'Doc to Doc' registry may notify linda@atypicalhus.org

Parents, please have your child's doctor utilize the physician contact data above if you feel your child would benefit from a 'doc to doc' consultation.



The Atypical HUS CONFERENCE was held on
Oct. 17th, 2009 at the University of Iowa.Our deepest appreciation for the outstanding efforts of the University of Iowa doctors and lab staff, who enlighted us with information as they created a meaningful and supportive environment for connecting research and aHUS families. We especially appreciate the courtesy extended to aHUS families and their physcians in regard to sharing the information presented at the Oct. 17, 2009 aHUS Conference.

Conference information has been edited and presentation Powerpoints are available to Members of this website and to physicians dealing with aHUS patients .Please contact the director of the Foundation for Children with Atypical HUS, Bill Biermann, via his Member page on this website, to request aHUS Conference Presentations.

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