Started by Linda Burke in Soliris. Last reply by Linda Burke Aug 25.
Started by Joy Lewis in Uncategorized. Last reply by Cheryl Biermann Aug 25.
Started by Joy Lewis in Uncategorized. Last reply by Kamal D Shah Aug 24.
Started by KaTrina Slaughter in Soliris. Last reply by Cheryl Biermann Aug 13.
Started by Christy in Uncategorized. Last reply by Cheryl Biermann Aug 11.
Posted by Kerri Grey on September 2, 2010 at 10:18pm — 1 Comment
Alexion Pharmaceuticals, makers of Soliris (eculizumab), asked the Biermanns and I to participate in an advocacy meeting on August 5th, 2010 to discuss issues regarding aHUS patients and families. We very much appreciated their kind invitation to visit Alexion Pharmaceuticals in Conneticut to speak with senior staff. In repres
… ContinuePosted by Linda Burke on August 31, 2010 at 3:00pm — 5 Comments
Posted by Kamal D Shah on August 31, 2010 at 4:25am — 3 Comments
Hi everyone!
I know I'm not on here much, but here's yet another awaited update. I'm enjoying my last full week of freedom before I head back to classes next week on Sept 7th, where I will be taking my place as an upperclassman as a Medaille College senior classman. This is going to be a hectic year, with all the responses I've been getting from people who want to get tested for me to donate a kidney to me. I've been getting emails and phone calls from people from other states.
… ContinuePosted by Jessica Olivia Frysz on August 30, 2010 at 12:48pm — 2 Comments
Posted by Zofia on August 30, 2010 at 4:43am — 2 Comments
Posted by NATALIE WALLACE on August 28, 2010 at 9:01am — 3 Comments
Added by Stephen Bradford Burke
Added by Stephen Bradford Burke
Saturday
September 25, 2010 from 9am to 6pm – Barker Brook Golf Course
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

© 2010 Created by Christy White.
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